Getting involved: contributing lived experience to research

I applied to join the Learning from Deaths: Learning and Action research Public and Relatives Steering Group in the hope that our family’s dreadful experience might be put to some good use. We don’t want other families to have to go through what we have suffered. I also knew that meeting other people who’d had harrowing experiences might be helpful to me because it might reduce my sense of isolation. The Steering Group was set up by the main researcher on the project, Dr Zoe Brummell, Anaesthetic and Intensive Care Trainee at University College London NHS Trust. The aim of …

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Inquest – a family’s perspective

My much loved daughter in law Mariana Pinto died, aged 32, on 16 October 2016.  The Coroner, issued a narrative verdict at the end of the inquest, on 13 March 2017:   “Mariana Pinto died on Sunday, 16 October 2016, when she stepped over the balcony of her home, fell from the third floor, and after some minutes rolled off the glass roof on which she had landed to the ground below. Her actions were deliberate, but she did not have the understanding necessary to categorise these as suicide.  She was in a confused state with features of psychosis.  This was …

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Family knowledge in a mental health crisis: Dorit Braun

I’ve had a few experiences of a loved one having some kind of breakdown or mental health crisis. What I have learnt is that the process of assessing a person in crisis takes very little, if any, account of the knowledge of the person’s loved ones/family/carers. The mental health crises that I have witnessed involved a person losing their mind and becoming psychotic. If you read about psychosis from people who have experienced it and survived, it is clearly absolutely terrifying. It can feel to them like everything in the world is directed at them – e.g. the TV speaks …

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