“Families Engaging in Positive Change”
Free webinar for family members/carers on working with healthcare providers for positive change after the death of a loved one in their care
Date: Tuesday 18 May 2021
Time: 7.00pm to 8.30pm
About this Event
Sometimes after a serious incident or even a death in the care of healthcare services, we feel we want to be part of a change for the better.
- Have you been thinking about how you might help improve healthcare services following the death or serious harm of a loved one in their care?
- Are you thinking about getting involved with your local health services but you’re not sure? Do you feel you’d like to know more about what it might be like and how you get the best out of this work?
Led by Jan Sunman (Chair of Directors, Making Families Count) and Rosi Reed (Training Coordinator, Making Families Count), this free webinar is designed for family members and carers. Hear from experienced family members who have taken part in this type of work after the death of a family member, as they share their experiences, tips and advice, helping you to build your knowledge and confidence in this area.
What happens at this webinar?
- This webinar will run on Zoom for 1.5 hours (7 pm – 8.30 pm).
- You’ll learn about Making Families Count, who we are and what we do.
- There will be two presentations by families members, one with a film. Presenters Sheila Handley and Dorit Braun tell us about their personal journeys after losing a loved one in NHS care and about their different decisions since then, leading to different types of involvement in local and national healthcare work.
- We’ll be running a workshop during the webinar, which everyone is welcome to contribute to.
- They’ll be a useful Q&A session where you can ask the presenters and the Making Families Count team questions.
- Participants will receive a resource pack after the webinar.
Sheila Handley took early retirement from chemistry teaching in 2007. Her son, Richard, who had Downs Syndrome, died in November 2012 as a result of poor care which led to massive faecal impaction. This was followed by gross failings and missed opportunities in the treatment he received after a manual evacuation of his bowels. Since then, she has been a bereaved family carer and expert by experience.
The inquest into Richard’s death concluded in 2018. Since then, Sheila has been committed to doing all she can to increase awareness of just how serious a condition constipation can be, particularly for people with a learning disability.
She was a member of the NHS Working Group considering the mitigation of the risks posed by constipation for people with a learning disability. She also worked for about a year, in 2019, as a Family Consultant with the charity Respond, putting together a training package for LeDeR reviewers to assist them in working with families and providing more effective reviews. Sheila has presented aspects of “Richard’s Story” to start the proceedings at numerous conferences and training events for health and social care staff, GPs, and learning disability nurses both locally and nationally.
Dorit Braun’s much-loved daughter-in-law, Mariana Pinto, died during a psychotic episode in October 2016. She had been assessed under the Mental Health Act the previous evening, given a sedative and sent home. This was a first episode. The Coroner issued a narrative verdict and a Prevention of Future Deaths report in March 2017.
Dorit has recently retired, having worked mostly in family support charities where she had developed and run training for teachers and education professionals on child protection. She also worked with parents, setting up and running a large national helpline, worked with national policymakers to influence policy, legislation and guidance and worked with volunteers. She has been a trustee and chair of charities. Dorit has three adult sons and three grandchildren.
After Mariana died, Dorit wanted to get involved with initiatives that would bring about learning and positive change. She was involved in the NHS Learning from Deaths programme; she has given talks to A&E staff and police and attended various events on Mental Health and learning from complaints. She is currently part of the Learning from Deaths, learning in Action steering group and has written several blogs for Making Families Count. Her focus is on talking about her family’s experiences of traumatic death, inquests, the complaints process and what she feels should have been learnt, as well as the importance of developing training and facilitation around engaging well with families.