Useful Links


PAPYRUS – Prevention of Young Suicide. Suicide is the biggest killer of young people under 35. They offer helpline support to young people.

AVMA  – Action against medical accidents.  This charity can also offer advice and referral to other agencies.

INQUEST – They provide free and independent advice to bereaved people following a death in state care or detention in England and Wales, and in other cases where wider issues of state and corporate accountability are in question. They also provide a guide to inquests for families. Downloadable and hard copies are available.

Bereavement Support

Cruse – General Bereavement support.

Winston’s Wish – Bereavement support for children.

The Compassionate Friends – an organisation dedicated to support and care of bereaved family members who have suffered the death of a child.

Advocacy and Campaigning Groups

Hundred Families – Practical information and advocacy for families affected by mental health homicides in Britain

AAFDA – Advocacy After Fatal Domestic Abuse.

Respond – A charity which supports people with learning disabilities and their families who have experienced trauma

Survivors of Bereavement by Suicide – A charity that exists to meet the needs and overcome the isolation experienced by people over 18 who have been bereaved by suicide.

Bringing us Together – A family led online support group and activist community.

Contact a Family – A charity for families with disabled children which brings families together to support each other. They support families with guidance and information.

Sibs – Sibs is the only UK charity representing the needs of siblings of disabled people. There are over half a million young siblings and at least 1.7 million adultssiblings in the UK, who have grown up with a disabled brother or sister.

Oxfordshire Family Support Network a support group which offers help, advice and support for families in Oxfordshire who are caring some someone with a learning disability

Learning Disability Links

Learning Disabilities Mortality Review aims to support improvements in the quality of health and social care service delivery for people with learning disabilities and to help reduce premature mortality and health inequalities for people with learning disabilities. A link on their website has a number of useful resources, including how to break bad news to someone with a learning disability.

Books Beyond Words has a series of books called When Someone Dies which are designed to help someone with a learning disability understand bereavement.

Mencap’s  2012 report Death By Indifference : 74 Deaths and Counting

Dimensions: Dying to matter: a guide for families following the death of someone with LD

Other Useful Contacts

Parliamentary & Health Service Ombudsman They make final decisions on complaints that have not been resolved by the NHS in England and UK government departments and other public organisations.  Their service is free.

NHS Guidance and Reports

National Guidance on Learning from Deaths

The Francis Report

Freedom to Speak Up Report

Nursing and Midwifery Council Guidance on Duty of Candour

NHS Resolution – Research into the reasons why patients make claims for clinical negligence

Mental Health Homicide – further reading

Victim Support – Homicide Service

Louise Casey Review into the needs of families bereaved by homicide.

Victims Commissioner Report – Victims of mentally disordered offenders

Domestic Homicide – further reading

Blog article: Domestic Homicide Reviews raise understanding of the link between domestic abuse and mortality

Domestic Homicide Review (DHR) Case Analysis – A report for Standing Together


New Possibilities – graphic capture

We regularly update this page, adding new contacts and resources. If you know of an organisation or useful report which you think should be included here, please contact us.